Well am really proud mum again today...M's show was really, really good...All the kids were fantastic...M well what can i say he was an absolute STAR...Ok yes am his mum and of course he was a star <ggg> He did Robbie so well and i did video that bit :o) It's too big to put on my journal though i think...Erm not sure if can add it on under add pictures...Only thing is again it's gone and went sideways on the computer!!!...I didn't manage to film him drumming as the bit where the piano and drum kit were was really dark...Even if i say so myself he was BRILLIANT on the drums...He accompanied the music teacher on the piano for the whole show...Except of course when he was singing robbie...Even when he sang 'Feed the World' with the other senior pupils he nipped back onto the drums once he'd sung his lines...I overheard quite a few parents say that the drummer was good so i had a huge grin on my face :o)
This morning i saw the psychiatrist again...So now she has asked permission to get G's medical file to look at too...I of course said yes no problem...She basically wants to compare the boys to each other...There are a lot of striking similarities between them...Like similar illnesses at similar age etc...They both had one called Henoich Schonleins Purpura 2 years apart...Now i knew when G had it that it was rare but he wasn't badly affected...He had a swollen ankle and a limp one morning when he was about 5 so i took him to the doctors...The gp looked at his foot and he had a bit of a rash on it...Next i knew she was off getting another gp to look at it...He came through had a look then nodded his head and left...Then gp got on the phone to the sick kids hossy...Leaving me worried and poor G sat there in his school uniform...Once at the hossy within a couple of hours they confirmed it was this HSP thing and he got some pills to take...Three days later he was home and fine...2 years later in the jan M had a similar rash but no swellings...Took him to same gp and she thought it was some allergic reaction to something...He got given some cream which did nowt...We were to and fro to that gp for months until she decided to send him to dermatology...Whilst waiting for that appointment he also ended up in hossy...He'd had a half day off school different to K&G...Me and M waled down to collect them as it's not far...Before we got to the school he was hardly able to walk...On the way home i had to carry him even though he was 6 and a big lad...Phoned doctors soon as we got home and ended up round there 15 mins later...Was a different gp (the really good one) and he examined his foot and knee...His whole leg had actually swollen up badly :o( ...He said to take him to the hospital...So i asked him if he thought it might be the HSP thing he'd had all along...He just looked at me with one of his wry smiles and said wait and see what the hospital said...Two days later they still hadn't decided by which time M was having to squeeze into his fathers socks even though he had tiny feet...Eventually after much nagging from me they got an orthapedic guy to look at him and he said it was the HSP...According to the psychiatrist it is rare enough for anyone to get...It is even rarer for more than one in a family to get it...And even rarer still for 2 siblings to both have got it...She asked if either of them have ever had brain scans which i said nopes...She had found written in M's medical file when he was at the special needs nursery that when they took blood to check his tegratol they also took for to check chromosones...But no record of any results!!!...Well it was NEWS to me that they ever thought of it let alone did it...So goodness knows what she will find in G's file...Perhaps it is time that i requested to see their medical files LOL...She is refering them both to her genetic clinic she runs with someone else...Sadly there is a year long waiting list but she will try and fit them in slightly quicker...I am seeing her again in january to discuss M and his temper :o)
Toodle pip tc xx
3 comments:
If you need space to stream the video from I can offer that to you........
You have such a marvelous understanding of all the related problems ,have you gleened all this information as you have gone along ,and then reseached it ,Those boys are so lucky to have a Mum like you ,Bless you Cath ..............Jan xx
You are amazing for all the things you have been through and had to cope with. I don't know how you do it :-)
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