Thursday 17 January 2008

Not a lot

Am going to try and drive the car round the block later...The weather is downright miserable and i really don't want to take a bus to G's review tomorrow...It was bad enough taking one last night to his parents night...Our council love their speed bumps and every time the bus hit one my shoulder jarred...And it was a half hour journey of about 7 miles to get there last night...That's a lot of speed bumps and boy was my shoulder protesting when i got home...His review is at 10.30am and i want to drive to it...Besides his school where the base is is right next door to one of our Asda's and i want some bits and bobs...And i have things to return to Asda from before Christmas...Fingers crossed i can find the receipts...I couldn't for a dress i bought K and she so didn't like the dress...I ended up telling her about it and she said then she didn't like it but i didn't get it taken back...So by time i went along 2 weeks later it was reduced from £16 to £4...No way was i taking only £4 for it...I'd get more on Ebay lol...It may fit one of my nieces and if she likes it then she can have it...So knowing my luck these jeans will be reduced now to a much lower price and if i don't have the receipt i'll be scuppered again...Am sure i paid for them seperately though and that the receipt was in the bag...The dress was on my normal weekly shop which is why the receipt went walkies.

I just want to say that even though G is doing exceptionally well now it hasn't been an easy path to get to this stage...Far from it...It's been full of obstacles and trials along the way and because he is about to leave school at the summer a new journey is about to start...Daunting enough for anyone leaving school but more so for someone with autism/aspergers...I started preparing for this 3 years ago by going in and talking to the local universities...Back then i made up my mind that if possible and if he was going to apply to university that a local one would be best option...I knew a lad from the local autistic society who moved away from home for uni...He'd been accepted for cambridge but cambridge couldn't give the necessary support...St Andrews said they could so he started there...It was a complete and utter disaster...They didn't supply the support he needed and after 2 years of absolute hell his parents got him moved to Stirling uni...Where he did get the support he needed to do his course...Like G he was exceptionally bright and intelligent but socially and with day to day things he just couldn't look after himself...At least if G is at home for uni then i can still be steering him towards being as independant as possible socially and with everyday skills...This is the side that the majority of people just can't understand...And i agree it is difficult for 'normal' people to get around their heads that just because someone is academically fine and comes across as 'normal' doesn't mean that they are...Social skills isn't just about interacting with others...It's also the everyday tasks and everyday living we all take for granted...Simple things like going to the shops and buying food to eat, realising you need new clothes, making sure those clothes are clean to wear, making sure you get somewhere on time...G using the normal service bus as they tried last term has fallen apart...I actually didn't know for a few weeks that he was being taxied home every day as he got home around same time by using the bus...There had been some issues on the bus with other pupils from that school who live in town and he couldn't handle them...So he was put back on the taxi permanently...IF he gets a place on the Engineering course then that building is still in the city centre...And it is only about 10-15 mins walk from our flat...I don't know if that is a good thing or a bad thing to be honest...I am also dreading the transition as it is like starting again from scratch...G takes ages to make friends and talk to people...He is quite shy on top of the aspergers which isn't a good mix to be honest...Am not worried about the academic side it is the other side am worried about...And it would be the same whether he was leaving to be in a job or at uni...The uni here he has applied to have an excellent disability support section...They didn't use to but they do now...They are well clued up on aspergers and will do a lot to support him...At same time i don't want him standing out too much as being different...I just hope he can make friends with other students who will accept him for who he is and not what he is and treat him same as they would anyone else...And accept the quirks he has...Even getting a part time job is a bit of a struggle with G...He has so many texture and touch issues that it restricts what kind of part time job he can try to get...And his age has restricted him as well...He was quite happy to try and get a part time job in a shop that sold console and computer games...But you have to be 18 otherwise it breaks the license to sell many of the games as they are 18+...No it's not been easy it's been a struggle with both G and M but there is more light now at the far far end of that tunnel than there used to be...And i can begin to contemplate having a proper life back a bit...But i still wouldn't change the last several years even if it was possible to do so.

4 comments:

Anonymous said...

Hi Caff, It must be so difficult for G each time there is major change to his life, but I`m sure with the right support he will do really well on his course. That poor young lad was certainly let down by his Uni and has in effect lost two years where he could have done so much more. I`m glad to hear that he eventually settled in a place where he has the right support.  I hope driving the car is more comfortable for you than the bus, at least in the car you`ll be driving and can be more careful than the bus driver.

Love Sandra xxxx

Anonymous said...

(((( Comfy driving Caff )))) G's real friends to be will seek him out.... and help him when he moves up :) Rache

Anonymous said...

I'm sure with your support he will be fine, you must be so proud how far he has come.

Anonymous said...

Im sure your boys will both do well you have been so suportive of them both ,and Kerry too of course ..love Jan xx