Car, footie and exams

Well my car's capput again <sigh> Smoke coming out of exhaust yesterday so it's staying put...More expense that i can't really afford :o( ...Will need to beg a lift to get my shopping done or get a taxi...Stupid thing is doing my head in now and i wish i had the money to buy a brand new one.

For those who've been reading this for ages may remember the boys went to a footie tournament last september...Well they got a letter each in about another one...This time it's the SDS (Scottish Disability Sports) national 5-a-sides...This time they hope to take 4 teams, 2 under 16's and 2 over 16's...It's at glasgow green this time and will be another long day out...This time i will be packing a change of clothes for the boys and for me having learnt my lesson from last time...Okies it's at end of may but that's no guarantee the weather won't pour with rain...For anyone who hasn't been reading my blog for very long back in sept the weather got so bad we were all soaked to the skin and how none of us got hypothermia i have no idea...Yeah they had their tracksuits last time but they had to put them on for one of the games as it was so bad and actually started hailstones...Fingers crossed their footie boots still fit them...G won't need to ask for time off as he's off on study leave anyway and M's school will be happy to let him go...5 aside will suit them better as they're used to playing in small teams against each other although they still won't be a match for the glasgow and ayrshire teams...It's experience for them though which to me is main thing :o)

Severeal nights this week we've had some eejits making a right racket (noise) in the street at sill o'clock in the morning...Glass has been getting thrown about and smashed everywhere too and mainly in front of our block :o( Yesterday afternoon when i went to take the boys to club i discovered the glass i heard being smashed in the early hours was in fact some homemade molotov cocktail :o(  When i got back my downstairs neighbour was clearing it up...I did tell him i had been going to do it when i got back...Last night there was more noise for ages and ages and more glass strewn about the street...I couldn't find the number for crimestoppers but i've looked it out today and next time am phoning them...Sick fed up of it and the homemade bomb thing is scary...Has to have been because the smashed vodka bottle was blackened and there was blankened material close to it too...I don't live in a rough area, i don't even live on some estate but in the city centre in a side street.

Gonna go watch the snooker and tidy up the living room and dust it all down again as G's hayfever has kicked in big time and any dust makes it worse...During hayfever season every day i need to dust especially if i've had the windows open or it sets him off even with his meds...I'd dread to think what he'd be like without the meds...Just hope that on the days he has exams they aren't cutting any grass around his school...His standard grade exams start on tues...They're scottish version of gcse's...He has technological studies on tues, english on wed and maths on fri...The week after he has geog and week after that he has graphic communications...He's now on study leave until the 5th of june!!!!...When i did my o'grades we got 3 weeks off...If any of our exams were later in the exam timetable then tough we were back at school and no study leave...He is going in to the base on thurs this week to study...The next week he will be in the day before his exam to study and same for the following week...Trying to get him to study at home is going to be a laff and a half...Anytime i say the S word i get glowered (glared) at LOL...English is the only one he is worried about...He really struggles with english and it stresses him so much...On tues i think i will ask his taxi escort to phone me on we morning to make sure we are awake...For his prelim he was up most of the night and last time i'd looked at clock it was like 5 or 5.30am and we're up at 7am...Don't want to sleep in...Right coffee, read paper and then dust again

Toodle pip tc xx

 

In shock LOL

Well i don't really have too much to say as such...Well i do have 3 bits of good news...As you know G got his hair cut and highlighted all blonde again...Now it's longish at the back, short over ears and long enough on top to spike up if he wants...His classmates had told him it was wicked again :o) Base staff didn't comment and as he said no comment from Mrs P is good LOL...Well he came in not long ago from school and said a miracle happened today...Mrs P told him his hair looked GOOD!!!!!!...You could knock me down with a feather am in shock LOLOL.

On to K...She phoned late last nite and got me to phone her back...She'd been sent an email from one of the lecturers at one of the uni's up here...He'd found her via the scottish youth parliament website...He's only gone and asked her to come and give a talk on youth issues in scotland today to the social science students some time in may LOL...She's emailed back saying although she is at uni in edinburgh she'll happily come back up to do it...It is on a fri which is one of her days off so not a problem...So we'll see what he says back to her...Also she phoned about an hour ago and said phone me back as another cool thing has happened...She's out shopping in edinburgh city centre this afternoon and got stopped in the street by one of these marketing type people...They were from a model agency LOL...I said to her you sure they are reputable and she said yeah though how she knows i have no idea...Anyways she got asked if she wanted to get a voucher to go to some beauty place to have a complete beauty makeover worth £250 for £50...Hair, nails, feet, make up the lot :o) Apparently they're going all over the country just now and are only chosing 20 people from each place they go to...After the makeover a professional photographer will take pics and she'll get one of them for free...K reckons they were stopping people who looked like they are in dire need of a makeover but i said i doubt that...They're more likely looking for people who they can see are photogenic...It's valid for 3 months and it's something she can use after she's been at neurology next week and once they find out what is wrong with her then she can use it to cheer herself up :o)  I know all mums think their kids are the best looking ever but i seriously have never seen a bad photo of K...Not even when she's been poorly and looking awful...Am gonna get her to tell me name of this agency and look them up on the net to find out a bit more though

As for me well i dunno yet if these new pills are helping or not...They have made me sleepy like the others did to begin with...Only problem is i have to take these ones with brekkie so am knocked for 6 a bit in daytime LOL...Am sure by end of this week i will be back to normal...Am too tired with the pills to go to the gym and i really want back there asap...Anyways G is off out to a friends and just me and M here so gonna think about tea

Toodle pip tc xx

 

Just a comment on a comment that made me giggle

definitely fill in how the worst day could be, even somebody from DLA once told me that, good luck with the encycopedia of a form, its so big nowadays they even want to know how many times you pee, I am sure

Sorry to highlight your comment jules it did make me giggle :o) ....The adult one is actually smaller than the one for under 16's...But it has stuff in it that under 16s one doesn't as by that age you are expected to be able to cook for yourself etc LOL...Could someone in authority somewhere please have told my K that before she left home at almost 18 ROFL...In under 16s one they ALWAYS wanted to know how many times you had to go pee and how much help you needed when going to do so...What i have always done in the several forms i have had to fill in for both of the boys over the last 13 years is where it asks: How many times, How long, How far, etc i have put in those boxes please see page X...Then one page X (can;t remember number) where it asks for any other relevant information about your disability to help your claim i have put down the following...'Due to the nature of G's autistic spectrum disorder then it is not possible to state a specific or even an average for how far he can walk...Then same for how long he can do blah de blah for...Then how many times he needs help going to the loo or having a bath or washing his damned hair etc etc etc...I fill in the WHOLE of page X with all the relevant info on ASD that is needed...It really is about time they revamped the dratted DLA forms to allow for people who have mental disabilities and made them mental disability friendly...OR what would be better still is for them to have a seperate DLA form altogether for people who don't have a physical disability because the current form which i doubt has ever been changed is all geared towards physical disability...I have actually said this to people in the DSS and people in DLA at blackpool when phoning them and they all agree...Anyways was just a wee (scuse the pun) add on for todays entry :o)

Toodle pip xx

Forms again

Well the appointment with man from DSS went fine :o)  He said what we were doing was really the cart before the horse LOL...He filled in the bit of the form i needed to do to become G's appointee and i signed it...He's ticked box saying G isn't capable of looking after his own affairs regarding DLA although he hasn't met him LOL...He just went by what i said and what his condition is...Then i popped up to my doctors and got the nice receptionist...Told her that i need an official letter from the doctor stating G is not capable of doing it himself...She knows it's always nice Dr Scott we see if possible so she's going to get him to do the letter when he's in next week...He only works mon & tues in that surgery and does a wed in their other surgery...I'll pick it up next week and then go and hand it in to the nice blokey from DSS...The man i got actually helps people fill in the DLA form if they're unsure on what to do...He certainly knew what he was talking about and said remember you have to fill in the WORST day possible that your son can have...It's not cheating the system although that can come across sounding like that...With autistic spectrum disorders and other mental health disabilities they can change drastically from day to day...Some may be able to go a couple of weeks feeling fine then it will kick in big time and spend the next few weeks totally in grip of whatever it is they have :o(  Actually with ASD's they can change from minute to minute, hour to hour let alone day to day or week to week...Anyways i digress kinda...I went into the local carers centre to ask if i could get an appointment with someone to tell me how to deal with the differences in the DLA form...G is now classed an adult by them as he is 16 and the form is different in a lot of places...So i now need to get my head round filling in adult form after years of filling in the ones for under 16s...Lovely NOT...This time i am keeping everything crossed that G is also awarded his for LIFE...It's not like there is a cure for his condition...Yes he is far more capable now than i ever thought he would be BUT the coping strategies he has could collapse around him at any time

M had that today...I got rather worried by 4.15pm as he wasn't home yet from school...I went out and looked around and asked in corner shop if they had seen him...I phoned his taxi escort at 4.30pm and got one of her kids...The taxi had broken down or something and they had just managed to get another taxi to take them home...So when M came in the door at about 4.45 he was not in best of moods...I asked what had happened and he said the driver refused to take him to our flat!!!...I'll phone his school tomorrow morning and find out what was going on <sigh> ...When his routine goes bananas like this then he can't handle it at all and goes on the defensive and won't talk about it...Apart from that it's been an uneventful day although it was warm and sunny...It's turned cold but still sunny now though...So time for a coffee and maybe something to eat...M's already eaten, G won't till later and to be honest i feel far too disgusted with all the water retention to want to eat anything but know i have to...Hmmm salad i think LOL

Toodle pip tc xx

What a pilaver

What a pilaver indeed <sigh> G as you know was 16 near the beginning of march...Once you reach 16 then DLA people class you as an adult...From 16 onwards then usually you are capable of managing your own affairs according to them...LOLOLOL  even your bog standard average teenager isn't that capable at 16 as such...As regular readers know there was a mix up back in march with DLA and that did get fixed kinda...So his renewal form he's supposed to fill in himself...Yeah right and am the queen of sheba <ggg> ...Well i telephoned the DLA office in blackpool and actually got someone sensible on the phone <SHOCK> ...I explained why i was calling and would it be possible for me to fill in the form for him and get him to sign it at the end...I explained that his writing is barely legible at the best of times let alone when he is stressed filling in a form like DLA one is...Nice woman said has he requested that you become his appointee to which i said yes...She asked if we'd had a home visit yet from local DSS office to which i said nopes...So she checked their records and said they had written to them at beginning of april and that i should hear from them soon...She couldn't tell me which of the 3 offices it was though...As his official appointee then i can fill in the form for him :o) ...So i said thanks and told her you'll hear from me again in a years time...She was surprised and said but we don't need to review appointee...I said not for G but for my other son who has same condition and will be 16 in may next year LOL...Anyways i got off the phone and then went and phoned local DSS...Eventually after about 6 attempts i got through...The poor woman on the switchboard hadn't a clue which dept to put me through to as they don't deal with DLA...Eventually she found a number for home visits and said we'll try them and if it's wrong then they'll put you back to me...So the woman i spoke to in home visits was nice but she wasn't sure as such about it all...Instead of coming out to visit they prefer that you go in to the office...I told her well G will be in school obviously and cannot take time off as his exams start in about 3 weeks time...He also doesn't get home from school until the office is closed...So she grabbed a man who was passing her desk who does deal with it all...Tomorrow i go in to see him at 12.30pm and i fill in my part of it all...Then i need to get a letter from our gp to state G is not capable of managing his own affairs and hand it in...This form is rather different to the version for under 16's so i need to look over it all very carefully...I just hope that once it is sent back that whoever in DLA office looks at it doesn't decide to lower the rates G gets currently...There is far too much of that happening and i really don't want the hassle and stress of having to go to appeal neither for myself nor for G...See although G is extremely capable academically and comes across as your average teenager he does still have a lot of social interaction difficulties...On the surface they may not be apparent to anyone who doesn't know him but they are there...Well we have 5 months to get the form filled in properly and back to them...Fingers crossed that this time he gets awarded the same rates for care and for mobility and that he is awarded DLA for life...I won't have quite the same hassles next year with M as his was awarded for life 2 years ago but i will have the rigmarole and pilaver of being made his appointee...G will be getting his EMA (education maintanance allowance) money of £30 a week when he's back at school in august...That is where we will start to get him organised and managing his own finances...God forbid he also has another £200+ going in every 4 weeks...He'd spend it all on rubbish...He's bad enuff with money at the moment without adding to it LOL...I use their DLA money just now to buy them clothes, games (sometimes), pay for the activities they do (ie garaths skiing) and to go out and do things with a carer...I'd like him to save a fair bit of his EMA money to keep for uni or college...That is going to be hard pushed to do but i live in hope...I HATE the DLA form...It's mega thick and basically you are damning your child when you fill it in...With a condition like autism which is a mental impairment then you HAVE to write the worst day possible...That worst day can happen at ANY time there is no specific textbook day for someone on autistic spectrum...Through personal experience with the boys i know that they can change from being nice as pie and *normal to having a total meltdown within seconds for no obvious reason...Anyways enuff of stupid forms i don't want to think about it just now LOL

They were back at school today YIPPEE!!!! and i did nothing...I slept all morning as i hardly slept last night...Now they're back i need to get back to a routine of some kind and back to the gym...Am too bloated to go on the gym equipment but i'll start with going swimming for this week...We had sad news from M's school...One of the pupils passed away at beginning of april :o(  It wasn't a boy in his class or someone he knew particularly well but he knew him by sight...Next tues they are having a memorial service in the school and parents can go but i don't think i will...Will see if my friend is going first.

Can i just say for anyone who missed the entry when i explained why the private journal...It's just some comments left recently confused me a bit (am easily confused <gg>) ...The private journal is NOT for me to use to sound off or as a sounding board...It's not a way of getting things out that i need to let go of...The reason i have started it is to write a record of mine and my family's lives right from when i had the boys...I always wished in retrospect that i had been one for keeping a diary back then...I wasn't and i do really wish that i had...I am basically writing my memoirs i guess of the last 16 years ever since i had G...It's about the autism and how it has affected our lives...So far i have only written 2 entries one about G up to his assessment and one about M up till his...The centre where they were assessed it was announced in our evening paper today has been saved from closure for now :o) That is fantastic news and hopefully it will continue to stay open and do the wonderful work it has done for the last 30 years...Next bit will be describing the centre and the work they do and the in depth assessments that both the boys had with ALL different professionals involved in the diagnosis...Basically maybe once i am finished (although it is a never ending story) i may see if i can get it turned into a book LOL...Well hey aim high in this instance you never know...So there you go am writing a chronicle of our lives...K will get to read it as she may be able to add stuff i have forgotton and there is one reader of this journal who may also get a link to read it...A family friend who may or may not be able to give some input in the early years LOL (You should know who you are) The sounding out and letting off steam i do in this one <ggg> ...So don't worry i will still be writing stuff here and i will be taking some bits from here for the other one...Right tea time i think

Toodle pip tc xx

Hair and doctors

Well firstly i took G to get his hair done at midday...We got out of there at 2pm LOL...He's back to having white blonde highlights and his hair looks cool or wicked as they say now...Whats the betting MrsP hates it ROFL...Do me and G care??? Do we heck and actually the more trendy his hair is the better to cheese her off <ggg> The hairdresser was ever so funny as she was german...So between having to speak slow for her and G's mumbling i had to act as interpreter...She kept saying to him 'I will give you nice blonde in your hair yes, not yellow blonde' She also had him fill in a card to say what he gets done for next time...I hope she can read his writing ROFL

So after him being at hairdressers i had the doctors...Went along and receptionist said no record of you having an appointment...Well funny i said as it was made over the telephone by someone here when he was off sick 2 weeks ago...So she spoke to someone else who said they'd deal with me...After a couple of minutes this other receptionist said it was her who had made all the calls and yes i had an appointment but i had phoned to cancel it last week...Pardon says me i did not cancel my appointment...She was adament i had and tried to offer to fit me in next week...I said that's no good as i will have no medication left...I was offered a repeat prescription....Ok by now i was not happy at all and said as politely as i could thanks but no thanks...I have just started anti depressants and need a check up appointment to see if they are working...Now the next bit made me laff...She went and EMAILED him...His room is right NEXT to reception...Like DUH!!!! yer sending an email to the room next door erm how silly is that!!!!...Of course i kept my gob shut and didn't say that to them...Anyway he saw me 35 mins later at end of his surgery...He apologised to me and said they have four patients with my name and that one of the others must have phoned in to cancel an appointment and they'd cancelled mine instead...Phew i began to think i was well and truly going mad...So he asked how i was...Told him well am not entirely happy with these pills...I have put on almost a stone in weight and feel bloated and yeuch...He asked if they were making me sleep better at night...Hmmm nopes the lower doesage did but not the higher doseage...In fact for last couple of weeks they've had opposite effect and are giving me insomnia and sleepy during the day instead...So upshot is am OFF these ones and been given different ones...He said the weight gain would just keep on happening more and more...I'd be wasting my money for the gym and for weightwatchers if i stayed on those pills...So new ones, don't ask name as i dunno yet, i have to take in the morning with brekkie...Also just swallow like a normal pill, none of this melt on your tongue malarky <phew> I'll have to start them on thurs though and not tomorrow as i haven't managed to get the prescription picked up yet...I have to see my lovely GP again in 3 weeks time as with it being the school hols it was hard to tell if the pills were helping how they should or not...Schools back tomorrow YIPPEE!!!!! I may go back to bed and be a lazy cow after they left for school...Or i may go to the gym for a swim and jacuzzi...Or i may clean up the flat a bit...Will see tomorrow morning LOL

Toodle pip tc

Reply to comments kinda

Ok from everyones comments dry mouth and throat seem to be a common side effect for anti depressants...No-one told me <pout> and it doesn't mention that on the blurb they put in the packet with the pills <sigh> At least i know now thanks to everyone on here :o) Still i think these particular ones have taken it to extremes LOL...The one that really irritates me the most is the weight gain...Ok it says in the blurb that you will most likely have some weight gain...Well more than half a stone in 3 weeks is to me a tad more than likely and a silly amount of weight gain...I feel bloated, yukky, disgusted and am supposed to be feeling better!!!!  Naaaaaaa don't think so...I worked damn hard to lose the weight i did lose and was in frame of mind to go and lose the other 5 stone i need to lose...Can't if am having to fight against meds as well as my liking for naughty foods now can i...One of K's friends is on anti depressants and they've got a side effect of losing weight...Now that type i could handle no problem <ggg>  Mind you it's silly for her as she's been put on them as she was bulimic DUH...Anyways no more whinging will see what my lovely gp says tomorrow...Oh i have started my private journal...Started it on a totally different screenname mainly because it's a name i don't really want too many people knowing...So far it's very very boring LOL...I have approached it in manner the psychiatrist is using...Start at the very beginning of their lives, in other words what my pregnancy with each of them was like and go from there...Am not so sure that there would be enough to write a book LOL...Am also going to go back through this journal and copy off specific entries as they are specific to the boys and part of the never ending struggle i guess...Not so sure struggle is the right word, battle, fight, banging head of a brick wall maybe but by me not them...Right more liquid and some toast and more listening to M's dulcet tones singing along to his hero <ggg>  Thank goodness M is actually quiet a good singer

Toodle pip tc xx

whoops

Forgot earlier so will say here...I still have no idea if these pills the doctor gave me are helping or not...Now that K is back at uni then i hope i get some idea as i know i would have felt a wee bit better with her being home regardless...I have the gp on tues afternoon but i am going to ask for a change in anti depressants...Basically i can't deal with the side effects i seem to be getting...It's not listed as a side effect but my skin and hair is extremely dry...I have dry skin and hair anyway and getting drier is not good...Also my throat and mouth are constantly dry since going on these pills...I have to either keep sipping at liquid all the time or chew on gum to create saliva...In the mornings when i waken up my mouth and throat feel awful, worse than if i have some cold or other...So am either sipping liquid or in the loo all the time and am keeping asda going in moisturiser and body lotion...Also i have put on weight since started to take them and that is one thing i could really do without grrrr...The higher doseage instead of making me really sleepy at night are giving me insomnia and consequently am dead tired during the day...Unless am doing something i fall asleep at drop of a hat...Fortunately i am ok to drive as driving keeps me awake...Will see what the gp says on tues..Now off to nag G that he is back at school on wed and has 2 days to do all the work he was supposed to over the holidays  TEENAGERS <sigh>

Thurs - Sun

     

 

We didn't go up north until friday...Mum phoned just as i was about to waken the terrible trio up on thurs to say she'd been up all night sick...So i said we'll leave it until tomorrow then...So thurs we didn't do much but K did go out shopping with one of her friends and as her student loan and bursary money was in her account she bought the boots that were in the sale...Fifty quid sale price!!!! i dread to think how much they cost before they were in the sale...She also had a carrier bag full of stuff from primark but as they don't have one in edinburgh suppose that's all right...Her money anyways and as long as she has enuff to do her the term.

                       

So fri we drove up north but we didn't leave early as both my sisters were working on fri...We went in past the ice cream shop before we went to mums <ggg> We did take her one up too...The kids mainly watched telly and i sat for ages nattering to mum...My neice came over and she sat nattering for ages too...I got to see what i had bought her for her 21st along with mum LOL...I nipped back down to the shops and not a happy bunny...Handbrake refused to work properly so i had to find somewhere flat to park the car then walk back up to the shop...Was big sis who served me so she said she'd pop in after she finished...Actually she came over and had her meal with us :o) Steak pie with yummy soggy pastry...I'd be happy eating all the pastry if it's soggy and not bothering with the beef LOL...Mum couldn't eat all hers and didn't look right...Me and sis reminded her she it was time for one of her meds...After tea we said cheerio to them and went over to visit little sis and her lot...Bit miffed that her eldest daughters card hadn't arrived at all...So got to cancel that cheque on tues...Just as well i put a cheque in and not cash :o(  After a while sis took us up to see their building site...Their garage is HUGE...She said it's big enuff for 2 cars but looks to me like it could hold at least 3 even though they only have 1 car...Sis is so fed up living in the house they're currently renting and really wants in to the house they are building...Hopefully july it will be finished enough to be hapitable...They'll have nice views across the land and sea and on a clear day will see right up to lossiemouth :o) We didn't get back here until after 10.30pm which was later than i wanted really.

           

Yesterday we got up at least an hour later than expected basically because i was capput from the long drive on fri...Got the car packed and us loaded in to take K back down to uni...We left around the time i was hoping to arrive there LOL...But that's her back and she didn't take everything back that she'd taken home...Just as well as hardly any room in car for it all...Her key to the main door for the halls broke in half for no reason...She managed to lock her keys into her room within 3 hours of being back...Honestly K and keys ain't a good combination LOL...We went to my friends and picked up stuff she'd left there and left the boys there and went back via asda...Stayed the night at my friends and came home today...Am shattered with all the driving.

                                       

The boys have had the one easter egg that they got from me and i've eaten part of the one K bought me...My mum gave me money to put towards their school trips away instead of an egg...My oldest niece's 4th birthday fell at easter time and she had about 14 eggs given as birthday pressies that year...That was the day she was rushed to docs after her party and then rushed into hospital and diagnosed insulin dependant diabetic...Since then none of my family give eggs to each other...Mum always gave her granddaughters a different kind of egg...K has one that is a crystal trinket box amongst other ornament type ones...But last few years she's just given them all money instead...Am glad anyway as i think easter is becoming too commericalised and all these companies are trying to turn it into another over commercial event like christmas...I loved going to roll my eggs and decorating hard boiled ones...Now that seems to happen less and less and the true meaning is becoming lost :o(  We used to have competitions at brownies and girl guides for egg decorating...I always won every year LOL...am not bragging about it just so happened i was always the winner...They started to make it that there would be more than one winner to give the others a chance...My 2 favourites that i remember were one from each...The one i remember well from being in the brownies i must have been around 9 at the time...I got a small box and decorated it like a brick wall...Then my egg i had dyed dark brown with onion skins, drew a crack on it's head and a bandage across it's face...It was humty dumpty sat on his wall LOL...One i remember best from being in the girl guides i decorated as a gypsy...Again i dyed it in a batch of others with onion skins...I glued hair onto it, made a scarf to go over the hair...I used gold foil to make big gypsy hoop earrings...Made a blouse to go on top half and a skirt to go over the egg cup it sat in...I had every little fine detail on all the eggs i ever decorated as i did with anything remotely art orientated as a child...When mine were little we did dye eggs and go out to roll them but gradually we stopped going...They won't eat eggs and the boys really hated going out anywhere to roll an egg...Well they hated going out where there would be crowds of people full stop...Of course now they're teenagers they're too old to go anywhere like that with mum in tow LOL...Anyway i must go and see what we will have for tea and go shopping for myself at asda up here...Hope everyone had a lovely easter sunday and aren't too sick with too much chocolate

Toodle pip tc

 

Last few days

 

Yikes i didn't think it was almost a whole week since i did an entry...Oh well shows what excitement we have had here LOL...We've not been doing much at all really...Last fri i can't remember what we did at all so can't have been anything...On saturday we went round to my best pals in the afternoon...Well me and K went round and met her in the playpark close to her house as she was out there with her 2 little ones...The boys didn't want to go there as they're too old ROFL...Then when we went back to her house i went home and picked up G and M and took them back round there...She's actually managed to get her fella to start doing some work on the small bedroom for their daughter <SHOCK> He's usually a lazy git to be honest...Was dust everywhere and being typical male had started clearing stuff out AFTER he's started sanding DUH!!!...I still have to get the 2 shelving units from them and took my 3 home and went back for them...Hmmm then her fella told us they were at far end of the attic and could i get them another day...One is going to go in my hall and going to be filled up with books...The other is going in my living room and my dragons are going on it...On sunday K was out at a friends all afternoon and part of the evening

                          

Monday me and G went out to the bank to get him a new account opened and to pay my car bill...We had to make an appointment to open the account so we did that, they could have said last week when i asked about it <sigh> ...Went paid the car bill and am not entirely happy...The labour is what cost the most and my garage doesn't charge as much as some...What am not happy about is having to pay for the rear brakes to be cleaned etc and the handbrake cables to be tightened up...Reason am not happy is that as you know i had the rear brakes completely replaced just 3 weeks prior to MOT...The handbrake i know would slacken off a bit but not the way it did...Hmmm i'll go have a wee chat with the owner next week...He's back from his hols in australia now...He'd gone over to watch the commonwealth games and visit his uncle...He'd heard about all the hassles they had whilst he was away for a month and he ain't impressed...After that me and G went to asda to pick up just a few bits and bobs...We ended up at 2 asda's LOL...First one had hardly anything hence going to 2nd one

      

Yesterday the boys went to playscheme...G stayed in and M went bowling...M scored 131!!!!!...Am lucky if i can get 31 <ggg> Me and K went into town whilst they were there and she took me to expensive shoe shop to show me boots she wanted...They won't put aside sale items so fingers crossed they are still there tomorrow...She gets her loan and bursary money through tomorrow...She checked her rent money had come out of her account and it has...I do think it's a bit off that they take the money before they're allowed back into the halls...We had a nice sandwich and went to primark...I bought her a jacket she wanted that was only £6 and she's off out with it on today...She's been ok since she's been at home apart from a couple of dizzy turns...So i haven't been able to take her to A&E...She does have appointment on may 2nd with neurology so fingers crossed they'll get her sorted soon...After playscheme we all went to see Ice Age 2 at the cinema...Ok they're all a bit old to be having mum along to cinema but tough was me really wanted to see it...One carer accompanying one of the boys gets in free so me and K were both free :o) My fave word again there LOL...They gave us forms to fill out to get new cinema passes as theirs are due to run out...This morning me and G got up earlyish and crept out of the flat to go to the bank...So his new account is now opened and he will get a card through in a couple of days and pin number the day after...I did ponder opening a joint account with him but that's not possible because of his age and my age...Besides i can still pay money/cheques in for him and i can take money out for him using his card and pin...With his permission of course...Tomorrow we are off up north to visit mum and my sisters for the day...Just hope the weather doesn't turn nasty...Off to eat the cornbeef toasties G has made me

Toodle pip tc xx

Not a lot really

          

 

Well on tuesday i was woken slightly earlier than alarm by the phone...It was one of the receptionists from the doctors...My GP had phoned in sick so they had to phone around and rearrange appointments for everyone...Mum could have come in after all but poor man can't help getting ill...Took the boys to new building that respite playscheme is at...I wasn't happy there were workmen there installing phone lines...Also someone walked past me said morning and i was so shocked i just went OH...That person used to be the general manager but *left* 2 years ago, hmmm not happy...Phoned social work when i got home which resulted in me phoning somewhere else to complain...Result was apparently the phone engineers had turned up out of the blue from down in central scotland...They didn't want to turn them away so kept the kids out of the way whilst they installed the lines, hmmm...Ok i said i'll let that one go what about the yuk smell of new paint...Now thing is people with autism very often have sensory issues/problems...G has a lot of sensory issues and smells is one of them...Apparently a fan had broken and they had been unable to get rid of the smell from one of the rooms...So they've been ordered it has to be fixed as a HIGH PRIORITY and asap...Will see next week if it has been...Also the man who was dealing with it for me said he'd spoken to X who was the general manager...I said thank you very much for that piece of information nothing you can do but you just confirmed a suspicion i had...Left the poor blokes mind boggling when our call ended LOL...I am NOT HAPPY about this man being back in charge there...I want my 2 out of there and somewhere else ASAP...The reasons he left i am not supposed to know but it's a very small grapevine and i know my contact is 100% reliable...To have him back in my mind i sheer folly and he has no right to be working in a place like he is...Anyways will talk it over with my social worker...Oh i took them to playscheme in a blizzard LOL...When i went to collect them in the afternoon it was glorious sunshine and warm...Weird weather <ggg> K got her eye test done and got new glasses...As she's still 18 she got NHS discount on them without having to go through rigmarole of filling out a form declaring she is a student andpaying up front and getting money back...She needs glasses for reading, close work, watching telly and using the computer...I must be due a test soon as well as am sure it was 2 years ago and not last year i had my last one.

Yesterday i woke with a migraine...Couldn't open my eyes my head was so sore...K crept out of the flat to meet her pal for the day thinking i was asleep...Told her when she came back to pick up jimjams that i was awake just not able to open my eyes...I did manage to get up about 11.30am as the boys had a friend coming over for the afternoon...Worked out fine that as i hardly saw them all afternoon :o) ...K stayed at her friends last nite and got home late this afternoon whilst i was out at asda...One of my friends came round with a computer monitor last nite...She'd got it free off someone at her work...Just need to get old PC set up properly again for the boys...With windows98 on it...XP is no good for some of their old games...I've been getting told to buy them new games and i said they have new ones but they like their old star trek games and i need a machine that can play them and XP doesn't not properly LOL.

Am taking my pills i have no idea how am supposed to know if they are working or not...I had gone to the doctors before i let things get to a stage where i would defo have been able to tell a difference in how i feel...Just wait and see i suppose...I haven't started a private journal yet as i can't decide what screenie i want to write it under...I spoke to K about it and she thinks might be a good idea...I said that i would let her read it but no-one else...She can maybe tell me where i've got something wrong or missed something...I do find myself recalling more as i am thinking about it all :o) She also pointed out that i don't have to write stuff chronologically just now but just as and when it comes back to me...Then if i decide to try and see if it's worth asking about turning it all into a book i could sort it out then...Chances of that every happening are about zilch as am not the best at writing

Today i've done not a lot really except go to asda for a food shop...It's nice and sunny outside although a wee bit chilly at points...There was snow this morning but i never saw it not being awake that early...The one joy of school hols is not having to get up at 7am <ggg>  Time for a coffee and some ginger nuts to dunk in it...Have to make it meself as M is watching Dr Who again...Oh and as am Scottish and a *Bird* maybe you should steer clear in case of bird flu <ggg>

Toodle pip tc xx

Curling

                  

 

Well the boys are now on school easter hols and they go back on the 19th...It's hard to believe K has already had 2 weeks of her 4 week easter break...She's not back from her boyrfriends yet but will be at some point this evening...Amazing how you can stretch wed-sat to an extra couple of days LOL...G's bus pass arrived on fri and M's on sat...G's is wrong <sigh> it should have a +1 on it for a companion but it doesn't...So had to phone the office this morning to point out the mistake so they can make a new one for him...I was actually quite shocked to see that FREE bus travel only started in england on sat...Free bus travel for OAP's and disabled has been available in local area for several years in scotland...Now the boys can use their passes ANYWHERE in scotland...Would have to wait another 2 years down in england...Companion used to be half price but now they are also free

This afternoon the boys had their 2 hour taster session at curling...They really enjoyed it and we could stay and watch them...I nipped back home to get a camera to take some pics...Wether they will come out or not is another story <ggg> It was through glass so i couldn't get rid of some of the reflections...It looks so easy when you see it on the telly but it isn't...M ended up using a curling cue to push the stone with rather than delivering it by hand...G managed to do it without the cue though...Hmmm G's the one that is supposed to have problems with motor skills...Well according to madam at the base he does LOLOL...Oh btw i am now calling her hitler...Nice ain't i NOT...I do so wish i could just click her on ignore like you can on AOL...The curling season finished tomorrow so during the summer we will be sent information packs on groups that they have...Juniors is only up to around 15 years old but one of the coaches said 16 would be ok to join juniors until they come on a bit...They also have a wheelchair curling group and are looking to set up a block for children with special needs :o) ...So maybe they will have a new sport to go to come autumn time...It was mainly primary age kids who were along with not many secondary age this afternoon and the boys stood out a mile as they were so tall compared to everyone else LOL...They had a small questionaire to fill in and G put down he liked sweeping best and M put throwing the stone...He didn't he used the cue <bless>

Tomorrow they are in day respite and K has opticians and i have the doctors...My mum was maybe going to come in for a couple of hours to visit but i had to tell her am out most of the day...My doctors appointment is not long after i drop the boys off and K's is after lunch so me and K are going to go wandering about town for a while...Be nice to just have some girlie time together and have nice coffee and lunch somewhere...I've been thinking over the weekend and i may start up a private journal...I don't know if it is one i will sahre though...I've always wished that i had kept a record of everything since G was diagnosed...If i had then i could have written a book to share our experiences with others...So am going to start and try to write it down in a private blog...Maybe once i have managed to recall stuff and get it written down i may let some look at it but am not sure yet...Am hoping once i start then everything comes back to me properly...The weather is much better now although we are getting a few april showers...Hope everyone is well

Toodle pip tc