Saturday 6 August 2005

As promised

Right a few entries back i said i would do a brief potted history of youngest so here it is...

He couldn't hear with left ear right from birth until he was 2...He failed first hearing test and was refered to ENT dept...At this point i was still going with eldest lad to there but they had different consultants...I felt like i spent 3 years almost living there between both the boys LOL...It was obvious youngest couldn't hear on left side because if you spoke to him from that side he wouldn't respond...If you were behind him far enuff for him to hear with his right ear then he would swivel his head round to try and listen to you...Even so he still started babbling away like normal and he started to say things like mum, dad etc when he should have...When we found that eldest didn't have glue ear and never had done at youngests next appointment i went a bit nuts...Poor woman testing him was so heavily pregnant am suprised i didn't bring on her labour...I told her no scrunching of paper, no shaking a rattle etc, i wanted and demanded a proper hearing test done...So he was refered to a special clinic outwith the hossy for it...We did have to wait about 4 months and 2 weeks before it he started responding if you spoke to his left side...We still kept the appointment and his hearing was found to be slightly less in left side than right but nothing major...I explained that he had started responding only 2 weeks before...They never eve rmentioned glue ear at all as being the cause...Whatever it was it went away anyways...Now everything else he did when he should like walking etc...Actually he was sitting up and standing up weeks before he should have been normally...That was due to fact he had a special leg brace on for a clicking hip until he was 6 months old...He had support so was easy for him to sit up and to stand up...He was a happy cheeful baby/toddler until he got his mmr...I know controversal of me to say it but it's true...Now you have to keep in mind this was years before anything in media or anything about it...Back then mmr was relatively new where we live and they didn't get it as early as you do now...He was less cheery after having it and a couple of months later he had a fit...I asked health visitor if it would be anything to do with the jab and got told no a fit as a side effect should happen within days...Rubbish i since foundout fits as a side effect of any jab can be up to 4 months later...Hossy put it down to a febrile convulsion...He had another fit about 3 months later again they said febrile convulsion...Four months later he had another fit and i phoned GP...The one that came out said he was fevered and had an ear infection and was another febrile thingy and gave me a prescription...He was fevered because that doctor had woken him up and he was angry at being woken LOL...I went got the meds and when i came home he had another fit so i phoned 999 and got him into hossy again...He had no fever at all and no ear infection...That GP i only see now if it's a dire emergency and i mean dire...Upshot is the following week they tested him for epilepsy and decided he did have it...He got put on meds and was on them for next 3 years...Once he was fit free for 2 years they weaned him off the meds and fingers crossed he's not had a fit since...I was warned it could come back when he hit puberty so am a tad wary now with him being 14...Because he was on epilepsy meds which can slow you down the health visitor suggested he got seen at same place eldest was at...He was reading fluently by age 3 which i since got told was a sign of his autism!!!...Funny his sister could read at same age and she isn't LOL...This was just to catch up for going to mainstream school...So he went part time mainstream nursery and part time the SEN one...Meanwhile he got the booster mmr at same time as his brother...With eldest he stayed same as he had been before getting it...With youngest NOPES...He changed overnight into a very aggressive child :o( ...Because he had become aggressive and was still on the epilepsy meds and was learing slower he went to SEN primary school...His name had been on waiting list for special language unit his brother went to but he never got to go there...By the time there was a place available he had been diagnosed on autistic spectrum too...By then they weren't allowed to take pupils on the spectrum...He was diagnosed in the june just after his 6th birthday about 3 weeks after he came off the epilepsy meds...I was in complete shock and i felt extremely stupid...I felt like i should have noticed ages before as his brother had been diagnosed for 4 years at that point...On reflection his epilepsy and the meds for it was masking the autism...He has since stayed in SEN education...I moved him from the school he used to go to 3 years ago as i felt he wasn't getting the education he needed there...Since he moved he has come on leaps and bounds as this school know he has a brain and they let him use it...Old one didn't, they also didn't follow the scottish national 5-14 cirriculum...His aggression had calmed down a lot at this school but since january it has become bad again...In the past i have always managed to pinpoint any triggers for it (ie: seeing his father again)...I am at a complete loss with any now except for the teenage hormones kicking in...The boys both developed differently and maybe if he had been as severe as his brother (having no speech) then it would have been noticed sooner...I am always peeved that he's not had the same education chances as his brother as he isn't daft and can be very intelligent...Anyways thats brief potted history of youngest and am off to watch last episode of enterprise...Toodle pip xx

2 comments:

Anonymous said...

A life and a half there Caff, could feel the frustration building up in me and I've not had to deal with it.  They're both great lads now for all they've gone through so don't feel stupid at maybe missing something. You did a grand job and not with the best co-operation either from the people that are supposed to know. xxRache

Anonymous said...

Wow, you and your boys have had so much to deal with over the years.  My hubby is slightly deaf in his left ear and had to have lots of hearing tests as a child.  His Mum used to signal him when they made the sounds though, so that he didn't fail them!  
Sara   x