Well am now back to where i started when i started doing this journal...I started the journal so i could keep a record of what was going on with youngest with regards to referal and what was going on at home, school and respite...Take note all THREE places...As anyone who has been reading the journal for a while will know i got my own GP to refer youngest back in april...Got a letter from my GP today and am now mega angry, pissed off, upset and lots of cossable words...Am so angry i actually swore on phone to my mum and i NEVER swear in front of her...She doesn't approve but she let me off today as she understood why...Child & family mental health have TURNED down the referal from the GP :o(
Reasons being:
a) They also had a referal from school GP....I now want a copy of that referal and i want to know what was said...If school GP says NO then i will demand it under Freedom of Information Act
b) I have had a considerable amount of clinical psychology input in the past...Eldest son had when he was under 5 and was also seen to be reassessed in oct 2002 for Record of Needs being opened...Daughter was along a few years back due to being refered on from another counsellor due to the problems she had when her father walked out (she became suicidal )...Youngest had some input from nov 2003 until aug 2004...At which time his file was meant to be kept open for another 6 months but was closed on 1st sept 2004...I know am crap at maths but i know aug till sept is 1 month not 6 <sigh>
c) The clinical psychologist he saw previously has now decided his problems are due to his home enviroment and she agrees with school GP that respite would be more appropriate...So basically she is saying am a shite mother and there are no problems elsewhere...She says there are none at school and school have coping strategies in palce which i refuse to implement at home...CRAP...He gets time out at home, i use music to calm him down and it has ALWAYS worked in the past up until late jan this year...the strategies used at school are ones i SUGGESTED because i use them at home...Only last week at parents night i got asked if i had any ideas for them to use on incidents that are happening at school and have started happening RECENTLY...I want to see school GP referal letter as i want to know exactly what she put in it with regards to respite...Yes i would love more respite but it doesn;t grow on trees...I talked about what was going on with the school GP and she agreed that he needed seen and urgently...
d) As there has been NO change in youngests presenting difficulties and i have difficulty in engaging their type of approach then they have refused the referal...Well excuse me for thinking that him punching me in the throat was not a significant change...Maybe next time i will have my daughter phone NHS24 and get someone out to see me as she cannot drive and obviously i wouldn't be fit to take myself up to A&E...Forgive me also for thinking that picking up a coffee table and throwing it at one of the workers at respite was not a significant change either (she had to go get her arm x-rayed in A&E)...Forgive me please for wanting help for my son before the police have to be involved and he ends up in prison when he is older :o(
At the end of the letter it does say please do not hesitate to get back in touch if we want this discussed further...Well too right they will be contacted...I did NOT want him going back to see the clinical psychologist he saw last year anyway...She was useless and to me showed no understanding of autism at all...some of the strategies she wanted to use he did not understand and are entirely unsuitable for someone with autism...He will say YES to anythign he's asked if not worded in a manner he can fully comprehend...IF i do not get any satisfaction then i will go higher and there will be formal complaints going in...It is a long time since anyone in some postition of authority has turned round and basically called my parenting skills crap and it hurts...I know am not but for someone to think that really does upset me...There has been a big change in his behaviour since january and neither me, respite nor school can work out what the trigger has been...Every time in the past the trigger has been spotted and then it has been dealt with as we knew why...I do wonder if clinical psych would sit up and take notice if i was actually dead as a result of youngest's actions :o( ...Maybe i should write a letter to be kept somewhere safe advising my family to sue them in the event of that possibility...I know it's possible because hey being punched right in the throat or strangled could result in that...Back in april when he did that i could barely breathe for quite a while and was left with a sore throat for days after...Anyways it is late am angry and i should go get some sleep...Am at GP's tomorrow for smear <yuk> so will take letter and beg them to fit me in an appointment on mon or tues...Am waiting on school to phone back too...Toodle pip xx
3 comments:
You're not a bad Mum, you've a lot to cope with there and have done really well from what I've read, you've got my thoughts that something gets sorted.............just seen your frog ooooooooooh I like it, you've a great sense of humour too.~xxR
caffy you are NOT a bad mum!!!!!!!!!im so angry i can hardly type!!!!!! if they call that `a considerable amount` theyre living in a dream world ,,,,,,,what YOU have is a considerable amount of time with your children!!!!!what they want you to do is ,,,,,shoosh basically,,,,,,they dotn want more work they most certainly cant be bothered i wonder how theyd react if hed been pyhsically abuse towards a teacher???? ohhh but of course! that would your fault too would it?????take it a lot lot higher caffy,,,,,,god knows u had to fight to get thsi referral ,,,,,,,,so because you as the childrens main carer have expressed worries,,,,,,,,,and theyre `understaffed/overworked` they choose to sweep it under the carpet? dont let them!!!<im so angry i could spit> humph!!!!!xxxxxxxxxxx
I'm so angry reading this. I'm shocked that the referal was turned down, and double shocked at their reasons. You are so not a bad Mum, you must know that! How do they think blaming the 'home situation' is going to help your son? And who are they to suggest that they know better than you where coping strategies are concerned. You are the one that has been there from the start, you are the expert and they should respect that.
Grrr! ((((())))) to you hon.
Sara x
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