Blimey!!!

Well i never got a pleasant surprise at the weekend.....got sent an email on support group email addy.....when i replied to the mum i asked how she had heard of us.....we'd been at an information fair the previous sunday and local carers centre has our details so thought might have been one of those ways.....NO turns out she had typed into the search bar certain specifics and up pops our group as one of the choices....WOOHOO!!!!!!!......am chuffed to bits....We only got put on the website under umbrella group a couple of weeks ago....So now we can be located via the net.....This is brill, this is fantastic.....You can tell am chuffed can't you <g> .....Hopefully now between the leaflets and the webpage more parents/carers will know about us and come along to meetings and join the group :o)  It's easter hols time which i hate....i hate 2 week hols i prefer summer ones.....I know i know summer is longer but it usually takes the youngest 2 weeks to get used to the change....So with 2 week hols he's just used to the change when he has to go back to school and adapt back to that so basically it's 4 weeks of hell :o(  BUT they do have 2 days in playscheme this week and 1 day next week....Today youngest went to cinema to see Robots with playscheme and eldest went to quasar.....Yesterday eldest phoned me whilst i was at post office to ask if he could go out to the local permant fairground....Asked who with and 2 of his older friends from the base had come round to ask him.....Was great of them to do this so said yes but to be home for 5pm....phoned him at 5.15pm asking where he was LOL.....he'd just come off a ride so i said scuse me but you're going out at 6pm get home now <ggg> .......he went swimming at 6 with his outreach worker so he had a busy day.....didn't make him any more tired for going to bed grrrrrrr......Tomorrow youngest is out with their worker and daughter is out with young carers.....so fingers crossed some peace n quiet for a couple of hours.....I feel a bit crappy and reckon tis same as eldest lad had last week but am determined not to get it LOL......and yeah yeah i know it's late but i can't sleep so :oP but toodle pip for now xx

Sods Law lol

Ok i was good all week and i put on 1lb!!!!!!!!!! Typical innit....I still am not managing to get to the gym so guess that ain't helping but hey ho never mind....Eldest lad is again off sick from school with this on/off/on/off sore throat & headache thing....Guess easter hols start tomorrow so 2 weeks of hell in store but time for him to recover properly....At least i have 3 days of respite playscheme for them....They are also going to a sports try out morning so that should be fun....Have lots of forms to look over for applying for funding for support group but can wait till after the hols....Social worker was great but i need someone back again so i can discuss youngest....Went into one local uni this week and spoke to disabilities adviser and she was brill :o) everything i wanted to ask she told me without me asking the questions....what they can do and provide for aspergers students is fantastic and this is without being told by a parent what they need to do :o) they did approach local carers centre a couple of years ago for help and they obviously listened and put into practise WOOHOO!!....If that is where eldest lad decides he wants to go then he can start making visits in summer hols for a couple of summers before he would start there....He can get a disability grant to allow him to purchase stuff he would defo need in order to cope with the course....I could natter on and on about it but won't just lets leave it at i was extremely well impressed :o) His skiing is coming on and he didn't fall behind with being off sick the previous week so thats good....youngest got a visit to local airport/heliport yesterday and loved it i think LOL.....Youngest got dumped on sat so he's not a happy boy...He's being saying he got sacked at being a boyfriend and it's too much bother to find a new girlfriend and he's going to stay single for rest of his life...All at age 13 (almost 14) <bless>  Had youngest review this week and it went well...School are really positive about him and he's doing well in his SQA access courses :o) No speech therapist just now but school do carry on the work left by previous speech therapist and fingers crossed they will get another one soon....Daughter phoned one uni yesterday as she hadn't heard anything about application and got told everything was posted out to all the prospective students on tues as they did have a delay....not arrived yet but am sure will arrive soon....getting kicked off now by one of them wanting online (must get a network set up LOL) so toodle pip for now xx

broken glass

Well youngest didn't want to go to school today again <sigh>  Told him he was going as he was better....Left him getting dressed then went back to check on him and he was crying....Said he's being bullied hence why doesn't want to go to school.....He left on taxi and i had to go take car to garage for MOT.....when i got back school had been trying to get me so phoned back......He'd been shouting and unhappy <sigh> so told teacher what he told me.....Thing is with the autism he takes anything said to him he doesn't understand as bullying....As school is an sen one then plenty of that happens....He did come home happier though but won't say what teacher and him spoke about....Oh well he might tell me in 6 months or a years time LOL.....I do think this is what could be behind latest regression of behaviour....He did come home with school report and it was good :o)  Came home this afternoon and when turned into street to walk don to flat saw glass all over pavement and road YIKES.....thought at first someone had broken a car window then saw wasn't that kinda glass.....Panicked as didn't know if was from my block or block next door....Was my block but not my window <phew>  Flat right up top and glass out of one of the windows.....Downstairs neighbour had phoned police and neighbour in block next door went phoned them too.....Right dangerous it was as spread all over road and pavement in front of my block and next door block......Guy who's car got covered in it and scratched to bits is fuming.....Bloke who lives in flat still not back so no idea what has happened......Police had phoned council and they sent 2 guys round to sweep it up....Then more came to board it up as still huge shards of glass in window wobbling EEKS.....They got told was first floor....like erm nopes my windows still intact thank u.....Third floor lol so they had to get a platform thing to get up there.....Puzzles me how anyone can leave mess like that EVERYWHERE as it must have been broken from inside out!!!!!  Now worried living in a block with some kinda nutter LOL....No idea if car passed or how badly failed yet.....just glad it wasn't sat outside the block today :o)  Been very good with diet all week and sticking to points so hope will lose loads next time rofl......toodle pip for now xx

This 'n' that

Eldest back to school after being off sick and even missing skiing on sat WOOHOO!!!  Went to wake youngest for school, wasn't well so now off sick BOOHOO!!!  Never mind the day did get better :o)  Social worker came round in afternoon and was really nice and was helpful!!!  She's coming back on thurs morning as after an hour & half we still hadn't discussed everything LOL.  She did explain why social work are involved with future needs review.  Good as i had no idea what it involved except for what the title said.  I now know that social work are involved in the process to decide wether or not once reaching 16-18 and adult services wether said child is going to be classed disabled.  Now eldest is extremely highly intelligent, very capable academically but socially, well there's a ways to go yet.  School have been saying uni material ever since beginning of 2nd year (think that year 9 in england not sure).  Maybe so academically but socially and being independent erm NOPES.  Social worker said she would be looking to class him disabled as he will still need support after leaving school.  Eldest is happy and accepting of this <phew> He does come across to anyone who doesn't know him as relatively *normal* (hate the word normal).  It's all the little things like shopping for food, washing clothes/dishes, cooking, ironing, cleaning where he lives, taking care of finance, paying bills etc etc etc etc that worry me.  All the essential life skills we all need to be independent.  Social worker said she was looking at how he could be supported if he left home to go to uni ie: supported accomodation.  IF he goes to uni it will be in city where we live though.  One of the uni's here has excellent reputation for engineering which is where his interests lie.  In saying that i would still like him to become as independent as possible even whilst living at home.  I am not going to be around forever and need to know he will be in a position to look after himself even if it's supported.  As review was postponed am gonna go to admin of that uni and ask for all information they have on supporting students with aspergers.  I know he's only just turned 15 but have always found in past need to start preparing at least 2 years in advance for next stage on in life.  Monday night so weightwatchers and i got my sticky 7.  Well happy and chuffed to bits.  Oh how daft for a grown woman with 3 teenagers to get deliriously happy about a shiny no 7 to stick on front of a bit of card LOL.  This half stone has taken ages to lose and am gonna buckle down and make sure next one doesn't take long.  Anyways tis late so toodle pip for now xx

cancellations

Eldest lad's review tomorrow got cancelled as head of base off sick....eldest lad off sick today....has to cancel social worker as i don't feel so good either.....so everything hunky dory LOL.....social worker now coming round on mon.....review re-scheduled for april.....shame had that youngest lads medical appointment had already been given to someone else.....daughter going away at weekend so peace n quiet LOL.....have bribed youngest lad to come to skiing by promising macdonalds after eldest finishes.....as social work not coming till mon now spent most of day either in bed or on sofa with headcold.....eldest lad had a good birthday yesterday :o).....he was pleased to get clothes and ski goggles and ski clothes....Oh and a choccy cake......Got 130 leaflets about support group to fold over weekend what JOY not lol.....got plenty cards to make too....this is all if i still feel okies if not will stay in bed except when playing chauffeur......anyways toodle pip for now  xx

shock horror gasp

Wow wonders will never cease....Social work phoned me yesterday morning!!!!!  Am still in shock LOL.....she was going into eldest lads school today to meet him....this was after phoning youngest school to see if she could arrange to see eldest!!!!.....she's coming round to visit here on thurs so tomorrow will be spent on mass tidy and clean up......then review on fri so i guess at least i will know what this person looks like......At least i know previous named social worker had good notes on both lads :o)  This morning has been interesting and a bit worrying at same time.....Went to a talk about sex, sexuality and autism.....person giving the talk didn't beat about the bush and was extremely frank in how and what he spoke about......I know it's hard for them to understand what is going on with hormones etc but it's not exactly easy on a parent either......Sometimes you think it does get easier as they grow up as with any child but this sex thing is going to be a nightmare to try and a) explain b) have to explain to anyone else they come across and c) make them grow up too fast.....From what this mornings speaker said really should have started preparing for this before puberty and actually not let them be children as such at all.....All very complicated and a lot of what any regular kid growing up take for granted doesn't happen automatically for them......youngest has had a girlfriend for over 2 years now though and i do worry he might try to do something inappropriate.....in saying that i really don't think he would.....It's just very sad that in order to help them make an easier transition to adulthood they have to be prepared so early so that it will be taken in <fingers crossed> they really have no childhood......I also find it incredibly sad what speaker said about people with ASD being taught how to be sociable and then when they want to have a boyfriend/girlfriend and want privacy <for the obvious> get told they can't.....this is in residential establishment though and hopefully won't occur with my sons or anyone whose children/young adults i know......I do try to treat them as *normal* as possible.....Hate word normal when someone can define it for me to my satisfaction then i may accept it but just now i refuse to :o)  .......It was interesting talk but could have been doing with having longer talk than just the morning and possibly more specifically geared towards teenagers/young adults.....I did find it funny when speaker said stuff such as interest in trendy clothing/haircuts/good grooming, basically what any regular <like that word> teenager does, usually they have no interest in......Youngest gets dressed in his best trendiest gear, washes and puts on the deoderant to go out on a date.....Eldest would kill me <same as his sis> if i bought him any naff clothes LOL.....Ok he doesn't always want stuff that costs an arm and a leg but that's only because he says we are poor <bless>......If we had the money then yes he would want £100 trainers and £100 jeans etc......Well got a lot to mull over and think about and decided if to attempt talk or not with the boys......I've always been very open with ALL the kids though and neither of the boys have ever shown innappropriate behaviour that could be construed by others as sexual.......Have managed to get some ski gear for eldest for his birthday tomorrow......pondered buying a cake but didn't as only use for it is the actual candles.....Neither him nor his brother will eat cake......will ask him when het gets home from friends if he wants one or not......Toodle pip for now xx

 

happy mothers day LOL

Stayed up to watch aussie grand prix and fell asleep not long before end duh!!!  Never mind didn't sleep through the alarm...Boys were in respite today so was nice to have break....Youngest gave me card he'd made at school on puter using publisher.....he does like to tell me names of progs he's using now to make me feel thick <ggg>  He'd made truffles in home ec on thurs and they'd wrapped them all pretty in cellophane with ribbon so that was mothers day pressie from him :o)  had them for brekkie LOL...Daughter made our tea tonight instead of buying me something so that was nice.....bang goes the diet this week.....yesterday at skiing with eldest lad he asked to go to asda after he finished......he was in buying a cd for me after a lot of rather unsubtle hints on my part LOL.....well they never got me killers album for my birthday so wanted it for mothers day.....had a nice relaxing day doing nowt so feel nice n relaxed for a change :o).....got busy week ahead and need thinking cap on for pressie for eldest for his birthday on wed.....think skiing gear might be a defo as he can't think of anything he wants and i can't think of anything he needs LOL......toodle pip for now xx

daggers drawn now <G>

Guess what!!!!  Social work didn't phone me back.  When i tried to phone the line was engaged then i got a call and had to go out.  I do have an answering machine they could have left a message.  They also have my mobile number.  It's not just me getting frustrated with this fiasco now it also eldest lads special base.  Maybe i should send them a bill for my phone calls and the stress <ggg>  Had to go out as got a call from eldest lads base saying he'd forgotten his swimming gear.  Said i would try my best to get out in time.  Found the swimming gear and his wallet in the bathroom LOL.  Then got call from a friend who has been really down and depressed wondering if i could take her out to some of the shops.  Said yeah no probs will be there soon.  Oh how wrong i was found front passenger tyre flat as a pancake.  Took it round corner to garage and they said they'd put the spare on for me and get a new one later in day.  Went to phone school and friend and had left moby at home.  Ran back to flat got moby and phoned school explaining and apologising.  Tyre had either brushed against something sharp or some <expletive deleted> had cut it <sigh>  More expense and got MOT in 2 weeks time lol.  Decided i hate cars but it is a necessity.  But although i hate shopping it was nice having a good chinwag with friend and she's beginning to feel a lot better :o)  Daughter is away next weekend to scottish youth parliament meeting so more expense.  Think i will be living on beans on toast for next 2 weeks which could maybe be good for diet NOT lol.  Toodle pip for now as no more long lies on saturday.  Not even on sun this week even though mothers day as boys are in respite <woohoo> xx

arrrrggghhhhhhhhh

Am i cheesed off or am i cheesed off.  Social work are such a pain in the rear end.  I've been trying since January 6th to get a social worker out to see me before 11th march and has anything been arranged!!!! Has it heck.  Phoned last week chasing them up AGAIN for umpteenth time got told X was backup worker for 11th march and they would get X to phone me on 3rd as that when they next in.  So gave them till lunchtime to phone me and phoned social work office i need to deal with.  Got told X was on another line but they'd get them to phone me back.  So being nice i gave them an hour to get off the phone.  Phoned got told X was out on visits now and wouldn't be back in <SCREAM>  Got put through to head of disabilities team instead.  Turns out X is not on backup on 11th they decided to swap with Y and not tell the boss!!!!!  So boss said he'd get Y to phone after 4pm this afternoon.  Guess what NO call <SCREAM LOUDER>  Going to phone again as soon as poss in the morning and demand satisfaction.  This is important it isn't just any old thing it's eldest son future needs review.  This is beginning of transition from childrens to adult services.  This is IMPORTANT.  Do not have named social worker as last one i had left last june and i've not been assigned a new one.  Hate dealing with backup and bossman as they're rubbish.  Do NOT want someone who doesn't even know wot eldest looks like deciding what is going to happen to him.  Funnily enough bossman agrees with my point he's just done nothing about it.  Am frustrated, angry and extremely cheesed off.  This review is already late and will have youngests in a few months too.  After having excellent service from social work in past i can now understand others who haven't frustrations.  Joy of joys read on sun only 6% of adults with ASD in scotland are in full time employment.  Had high hopes for future not so sure now :o(  Relaxed and made some birthday and mothers day cards earlier.  Surprised they turned out well mood am in LOL.  Youngest is now terribly clever in my eyes and am thick according to him and daughter LOL.  For red nose day he <bless> has organised a who wants to be a millionaire type quiz.  He's written the questions, put them onto powerpoint!!!!! (this is where am thick) and roped friends into helping him.  I have absolutely no idea how to use powerpoint LOL.  Got told am stupid.  You write it up on the prog and turn into slides that you then project onto screen.  Muttered and went off in huff saying computers didn't exist when i was there age ROFL (ohhh am so old) Needless to say am terribly impressed that my 13 year old has managed to achieve this.  Will now go off to get some kip dreaming up ways of strangling social work <gg>  Toodle pip for now :o)