Under the weather

Just a short note in case anyone has been wondering where i am....I've been poorly since sat...Sun i was so ill first thing i had to phone respite and ask them to pick the boys up in the mini bus...Fortunately social work have it written into the contract they will pay transport if needed in emergency...Had the GP yesterday for my monthly checkup about the depression...He said there is a particularly vile tummy bug doing the rounds and that's what i have...OH JOY!!!!...If the boys were going to get it then they'd have had it by now <phew>...I can't find M's clothing list for his trip ARGH...If i can't find it tonite then i need to get another from the school...It's mon he goes away so i need to get washing and packing...Typical i have a bug and need to lie down when the weather is glorious and i want to be out in the sun

I have another link from the NAS website...Don't know if anyone remembers not too long ago a mother commited suicide with her son by jumping off the humber bridge...Well a couple of years ago another mother did the say in Durham with her son...Both the children were autistic spectrum and these parents were at end of their tether...I can totally empathise as it wouldn't be the first time over the years i have felt like enough is enough i can't do this anymore...An MP has tabled a motion in parliament for better provision of services etc after the most recent tragedy.

The National Autistic Society - Speaking up for autism in Parliament

Ok this was going to be a short and sweet entry...K was a speaker at a conference on mon which i will write about tomorrow...I am reading but not commenting as such so do forgive me...K has not had the results yet but i will say when she has.

Toodle pip tc xx

Friday

I didn't manage to get back on here yesterday and now i've forgotten what i was going to put LOL...It's been one of those weeks really, well more one of those fortnights...I've been so busy elsewhere online that i have had little time to read journals, boards or do entries here :o(  I ended up throwing a hiss fit last nite as i was so tired <sigh>

Today the sun is out and all the windows are open and it is a glorious day...Still can't hang out the washing because of the builders though :o(  ...Both the boys are in school today HURRAH!!!!...G is in for induction day to 5th year and on mon he starts 5th year properly...M goes away to Bendrigg on the 12th and i can't believe how quickly time has flown in for that...One IMPORTANT thing i have forgotten to say is that UKHostWasp is unable to do entries on his journal just now...He's having problems with accessing it to make an entry but it working on the problem but he doesn't have much time due to his voluntary work that he was telling us all about so wonderfully well...Hopefully he'll be back sooner rather than later...Oh and i put a different pic on my sidebar...I meant to a couple of weeks back but i couldn't shrink the pic enough...Am totally useless with techy stuff LOL...Eventually i did manage to remember to ask a friend on here and he tried to talk me through doing it myself...We gave up and he shrunk it for me <ggg> ...Much prefer this one as my face doesn't look so shiny in it :o)

Ohhh i remember what i was going to add yesterday now LOL...M wasn't happy and didn't want to talk about the tournament at all...He had coped brilliantly well until right at the end...Their manager was told they were in a play-off so he got them together to go and play again...Then the organisers said sorry we made a mistake...M didn't take that too well <sigh> ...So yesterday he didn't want to talk about it at all...But at about 5pm yesterday G pointed out that his team lost one of their games 10-0...M then said he'd only let in 8 goals in three games so he's now happy that out of the four teams from here his did the best and he was the best goalie LOL...He did go to athletics last nite and they were doing high jump...Hmm considering M is most definitely NOT built for high jump he wasn't too bad.

Time to catch up on journals and perhaps learn to say NO to people...Am too nice and say yes if asked to help or do something for others...Last nite's hissy fit means i really have to learn to say NO or i will burn myself out again...I have the opportunity to go away in sept overnite and i desperately want to go...But as it is the day after Robbie i don't know if it will be feasible...K hopefully may be able to brother sit in edinburgh but she won't know for a few weeks...Oh well time will tell

Toodle pip tc xx

Footie

Am shattered today and so are the boys...G's last study leave day so he had no school anyway and M looked like death warmed up this morning...Phoned his taxi escort said he's not going in he's done in and sent him back to bed...Yesterday was a very long day...We were up at 5am, well i was and i woke the boys about 5.15am...We did have a quick brekkie and i made sure that i had everything packed and not forgotton anything...Well i did forget something, suntan cream LOL...G's face is reddish/brown, M's is a bit pinkish and my nose is burnt...The weather in glasgow was glorious...To be honest after lunch it was a bit too hot for them playing 5-aside footie...I had packed plenty non fizzy drinks for them though...All in seperate bottles for after each game.

The 5-asides is graded and despite the disabilities officer up here asking several times she had not been given any advice on what grading our teams should be...So our 4 teams were in too high a grading :o( BUT they tried their best which is all they could do...G's team lost all 3 of their games, so did the other 16+ team and one of the under 16 teams...M's team lost 2 games and drew the third game...Poor G was shattered as he had run his heart out trying to be in defence where supposed to be and up front at same time...Haven't seen him have to use his asthma puffer so much before...M was goalie in his team and although he let in a total of 8 goals his team were more fairly matched up in their group...Actually M's team did gell together very well and were damn unlucky...M did have some fantastic saves :o)  The first 2 teams they played against our lads had a lot of shots on target but the 2 goalies were good...And in the 2nd game they had a rubbish ref <sigh> ...In their 3rd game our lot were 2-0 down when they missed a penalty...Then they got another penalty which they did score from, then scored a brill goal and in the last few seconds they missed a sitter of a goal...They did all enjoy the day though which was the main thing :o)

One of the other parents had been talking to some of the other teams and was not impressed or happy...Apparently one of the teams was from a young offenders institution!!!! and a couple of others were from schools for kids who had been excluded from everywhere because of bad behaviour...Now whatthe heck were teams like those doing at national DISABILITY sport tournament!!!...There is words going to be had between our disabilities officer and the organisers and about the grading system...We will be back down next year though :o) Anyways more later as i have to go for a bit

TTFN xx

Laters

Well the birthday boy is in his room watching series 3 boxed set of Quantum Leap...He bought it using some of his money and the gift card he got back in march...We actually watched the whole of the monaco grand prix :o) It was more exciting than usual with plenty of incidents...Not least of which was michael schumacher *parking* his car yesterday and being sent to the back of the grid LOL...Very unprofessional of him but nothing new as he has been a *bad* boy in the past...Brill to see Coulthard back on the podium too :o)

So me and M walked into town after the F1 finished...So far he has £30 cash, which he's spent, a £20 cheque and more money on the way...I bought him the Nintendo DS with super mario kart game...Two games for the PS2, the winter olympics one and Buzz the big quiz...The Buzz game is his pressie from G :o) We got the bus home as he decided he was tired LOL...Thank you to everyone who filled the NAS campaign thing in either via my journal or Sara's one :o) My darling K has emailed it to everyone she knows and ordered them to do it LOL...She's also told everyone she knows to *spam* their friends with it too <ggg> M was on cloud nine last nite because Robbies team won soccer aid even if they were an english team...Was rather funny ,and no offence meant, but both him and G said we're only supporting them because they are Robbies team we do not support england...Maybe i have brought them up too patriotic <ggg> So they're in their room giving me peace and quiet so going to catch up on boards i read and blogs and then make team...M wants his chicken strips with roast tatties and G wil have his usual beans/sausages on toast LOL...May manage to persuade him to have some roast tatties instead...Am having steak :o) It's not a bank holiday in scotland (cept for the banks though usually the main branches here are open for a couple of hours) but hope you have some nice weather for yours and have a lovely day tomorrow

Toodle pip tc xx

Happy Birthday to my baby boy

My baby boy's birthday today...As you can see M is 15 now and i think that's supposed to make me feel old LOL...We're off out soon to buy his birthday pressie and for him to spend the £30 he has been given so far...He's rather cheesed off that his birthday has fallen on a sunday this year as it means no post...He opened the 2 cards that arrived yesterday grrrr...One from my older sis arrived on fri so i hid it until this morning LOL...It's a cheque so i will put it in his account tomorrow...Am allowed to watch half of the monaco grand prix LOL...We won't have cake well we might but am the only one who will eat it so not much point or a good idea LOL...He's 6 feet tall and still growing and doesn't seem like 15 years since he was born...That only feels like yesterday...Ok am getting old now it's official <ggg> BUT i don't feel old :o) More later i better go get ready to go out...Here's a piccy of a cake that will do instead

TTFN xx

 

Make School Make Sense

I know that Sara over at SmilesHouse has already done an entry on this BUT some that read here don't read her journal and this is VERY important....Please please click on this link and fill it in and help the NAS campaign for better understanding and education in schools for autistic pupils...As you all know from reading my journal and other journals autism is an extremely complex disability...It's not as straightforward as most other disabilities are...Some teachers do believe they are just badly behaved little toerags and only believe that autism exists in it's classic form...Classic autism where the person who has it is in a world of their own, silent in a corner is actually not the most common type...Inclusion in schools is all well and good in theory, however it MUST work both ways...Teachers need training specifically in autism in order for inclusion to work...Also the pupils in the school need educating in autism in order for inclusion to work...There are far too many autistic/apsergers pupils in mainstream schools who are being excluded and not taught in an appropriate manner...They are not being *included* at all :o(  Now i know i have been incredibly lucky with G because he has a mix of the best of both worlds...For secondary school he is in a base/unit that is for high functioning/aspergers pupils...He gets mainstream education in subjects he can cope with...He gets support if needed in those classes...He also get a base cirriculum which will enable him to cope better once he is beyond school age and to lead as *normal* a life as possible...Although M is in an SEN school his school also equip them with those same skills...The usual type of special needs base/unit that is attached to either a primary or secondary school doesn't often work for a pupil with autism...Please read about the NAs campaign and add your name to it :o)

The National Autistic Society - Campaign with the NAS

Thanks in advance :o)

Too many Zzzzzz's

Slept in this morning...Didn't even hear M's taxi tooting for him <whoops> They waited though :o) But he decided not to bother with putting on socks or looking out his swimming gear...I still wanna just lie down and sleep but if i do then i will be awake half the nite and sleep in again tomorrow so i better not.

K said the EEG on fri was alright but her hair was disgusting after...Then she didn't get a chance to wash it as people kept popping in to see her or phoning her...Eventually late at nite when she did have a spare 5 mins to have a shower the light in there was broken DUH!!!!...Yesterday morning she got the 24 hour ECG monitor attached to her at the hospital...She was a bit worried that she might get arrested by the police if someone saw the bulge under her clothes, hear the ticking and scream bomb...She was moaning that the patche were really itchy too...Was 2 each side just above her breasts and 2 below them at each side with wires attached to a small machine thing that ticked...So yesterday everyone was calling her a ticking clock LOL...And how typical that the day she had it on she didn't blackout although she did have a couple of dizzy turns...She had to sleep with it on as well though goodness knows how without the wires coming off...I'll phone her laters or talk to her on MSN to find out how it went...She was going back this morning to get it taken off at 9am

G got back yesterday about 6.20pm with a black bag full of wet clothes and trainers LOL...He also had a DVD of them white water rafting on the fri which we need to watch later...He said he had a brilliant time and loved it all except this year no pressies as they didn't get a chance to spend the money they had with them really...Some of the lads did spend their money as they didn't do all the activites but G took part in them all...Sat he was kayaking across the loch, then he was absailing down a sheer bit of rock, labyrinth which was a pitch black mze underground and they old had 2 low light battery torches...On sunday they did jacobs ladder which was a ladder made out of logs that they had to use team work to climb up, then they did something called Splosh which was gorge walking with extra splosh pools, he did the labyrinth again LOL and they lit a campfire in the evening...On mon before they left to come home they did raft building...Their raft did float although it didn't move much and could only support 5 people LOL...He went to footie training soon as he got home and was absolutely shattered...Today he got up about 11.30 but he still looks tired...The disabilities sports officer phoned yesterday afternoon and said there wouldn't be many places for parents on the bus...But as M had been a bit tetchy last time that me and 2 other parents who's kids need them there were being given first refusal...So on 31st we'll be up at 5am again to get the bus to glasgow ARGH...Gonna be sleeping on bus on way down methinks <ggg>

This morning i had an appointment with the Occupational Therapist...Now on the appointment card it looked like it said 11.50...I went along and she asked where i had been as it was at 11.00...Showed her the card and said well that looks like a 5 to me and her secretary agreed LOL...And i was supposed to have G with me although he hadn't told me that and neither had the base <sigh>  So now have an appointment for next tuesday at 11.00 and will be taking G with me LOL...Coffee time to keep me awake

Toodle pip tc xx